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Resources

Our resources to help our patients or anyone in need of help with lymphedema.

Breast Cancer: Support, Education, Advocacy & Care

Organization Education & Info Emotional / Peer Support Financial Help Advocacy / Policy Research / Trials Young Adult Focus Rare / Specific Diagnosis Practical Help Additional Notes Website
Living Beyond Breast Cancer (LBBC)XXHelpline, webinars, survivor-led programminghttps://www.lbbc.org
Breast Cancer Research Foundation (BCRF)XXLargest private funder of BC researchhttps://www.bcrf.org
Breast Cancer AllianceXXFocus on underserved communities & fellowshipshttps://breastcanceralliance.org
National Breast Cancer Foundation (NBCF)XXXScreening access & patient navigationhttps://www.nationalbreastcancer.org
National Breast Cancer CoalitionXXXSurvivor-led policy & research advocacyhttps://www.stopbreastcancer.org
National Consortium of Breast CentersXXAccreditation & quality standards for centershttps://www.breastcare.org
Breastcancertrials.orgXXTrial matching servicehttp://breastcancertrials.org
Nancy’s ListXXGrassroots, peer-driven resource sharinghttps://nancyslist.org
Triple Negative Breast Cancer FoundationXXXXTNBC-specific education & eventshttps://tnbcfoundation.org
FORCE (Hereditary Cancer)XXXXGenetics, BRCA & inherited cancer focushttps://www.facingourrisk.org
AiRS FoundationXAccess to breast reconstruction surgeryhttps://airsfoundation.org
METAvivor (Stage IV)XXXXXOnly nonprofit dedicated solely to MBChttps://www.metavivor.org
Young Survival Coalition (YSC)XXXXFertility, career & young-adult issueshttps://youngsurvival.org
The BreastiesXXXXSocial community + advocacyhttps://thebreasties.org
5 Under 40XXXXHolistic care: beauty, wellness, medicalhttps://5under40.org
Breastcancer.orgXXExpert-reviewed education + forumshttps://www.breastcancer.org
CancerCareXXXXOncology social workers & financial aidhttps://www.cancercare.org
SHARE Cancer SupportXXSurvivor-led helplines & groupshttps://www.sharecancersupport.org
Cancer Support Community / Gilda’s ClubXXFree counseling, groups & workshopshttps://www.cancersupportcommunity.org
Tigerlily FoundationXXXXFocus on health equity & BIPOC patientshttps://tigerlilyfoundation.org
Metaplastic Breast Cancer Global AllianceXXXXXRare, aggressive subtype focushttps://www.mpbcalliance.org
American Cancer SocietyXXXXXXLodging, rides, national reachhttps://www.cancer.org
Susan G. KomenXXXXXXLarge-scale grants & helplinehttps://www.komen.org

Lymphedema & Compression Resources

Organization Hands-On Treatment Education & Self-Management Compression / DME Insurance / Policy Help Peer Support Advocacy / Research Additional Notes Website
ShechterCareXXXSpecialty outpatient lymphedema & breast carehttps://www.shechtercarenj.com
National Lymphedema Network (NLN)XProvider directory & care guidelineshttps://lymphnet.org
LE&RNXXNational lymphatic advocacy & researchhttps://lymphaticnetwork.org
Lymphie StrongXXHereditary/primary lymphedema focushttps://lymphiestrong.com
Lymphedema Treatment ActXXMedicare compression coverage lawhttps://lymphedematreatmentact.org
Compression Suppliers (e.g., Sigvaris)XMedical-grade compression garmentshttps://sigvaris.com